Us

Us

Thursday, December 1, 2016

What may seem like years will just be a moment

Hey all! It's been a while and I've missed you all. So get ready for lots of catching up!

I don't know if you all remember back in May, we had our 4th embryo transfer but instead of one embryo we decided to do 2 embryos. We had to beg Dr Griffith, but he took a chance. Well, one or both had attached, but unfortunately at my 6 week check up at my REs, they couldn't find a heartbeat or a sac. I was definitely pregnant since I had my hcg done once a week and they confirmed it. I guess the world wasn't ready for this baby or babies. It broke our hearts to know that we wouldn't have yet another baby to watch him or her grow. You would think that by now I would be used to it, but it doesn't get easier. It doesn't get easier because that baby was alive and real even if it was for just 4 weeks. It was our baby and we had so much hope and faith that this would be the baby we would be holding in our arms in 9 months. Like I've said in past posts, I don't know why God makes us go through this or what His plan is for us, but my faith in God hasn't died or dwindled, it's actually grown. My relationship with my hubs is stronger than ever. 

Baby Barker 4 and Baby Barker 5 <3 My angels
Since this was my 4th loss, my RE was concerned and recommended I get an appointment with a reproductive immunologist, Dr Braverman. The only bad thing about that is that he's in New York, but he still works with people all over the world and Dr Griffith and him have known each other for years. I made a phone appointment with Dr B and 2 days later he called and we chatted for about 10 minutes (free 10 minute consultation). I called the hubs and he also joined in the phone call. I was very impressed with Dr B and both the hubs and I were very excited to know that we had another plan ahead of us. Dr B said that the next step would be to do an immunology testing (yay...more blood work!) and ovarian assessment report (basically blood work to see how many eggs I have left in my lifetime). I got the kit about a few days later and had the blood work done. 17 vials of blood later, they overnight it and said I would get the results in 6 weeks. Once I started my period, I had the OAR blood work and they sent that out as well. I was surprised that Dr B called me 4 weeks later with my tests results. I had mixed emotions. I was nervous, excited, and scared. I didn't know what they had found and I think being in the unknown made it worse. So Dr B said that I have a very strong inflammatory profile, which 93% of his patients have. He said I have low white blood cells (which makes sense why I get sick all the time), but can be fixed with meds. I also have natural killer cells which is a type of white blood cells that fights anything "alien" in my body. NK cells can also be treated with intralipid infusion treatments. 

Immunolgy kit
More blood work. Woot! 
Ovarian Assessment Report
**Intralipid infusion treatments is a synthetic product composed of 10% soybean oil, 1,2% egg yolk phospholipids, 2.25% glycerin and water. Based on research performed at SIRM and elsewhere, infusion of IL lowers Natural Killer cell activation (Nka) as effectively as does, intravenous gammaglobulin (IVIG.) When indicated IL (as with IVIG) is infused 7-10 days prior to ET and one more time again after a positive pregnancy in women whose Nka is due to an autoimmune causes (antiphospholipid antibodies and/or antithyroid antibodies). In cases of alloimmune implantation dysfunction (DQa and/ HLA matching between the embryo recipient and the male partner) the same applies but in this situation the infusion is repeated at 2-4 week intervals until the 24th week of pregnancy. 
We have supplanted IVIG with IL therapy in a significant number of women undergoing IVF , and who had immunologic embryo implantation dysfunction. The results thus far have been excellent, way beyond our initial expectations. 
At last we now have a safe and inexpensive alternative to IVIG therapy…Intralipid! What is more, IL costs about 10 times less than IVIG, is not a blood product and is without significant side effects. ** source from https://www.carefertility.com/ivf/viewtopic.php?t=39200

Dr B suggested I get a laparoscopy done because I have unknown endometriosis. I actually had the laparoscopy done 2 weeks tomorrow. I'll get to talking about the surgery a little later. I also have another DNA mutation called DRB11 (Go me...not!). Luckily, he said everything is fixable with meds and he guarantees me getting pregnant and having a live birth, but all in God's hands. After he finished telling me all of this, I cried for about 5 minutes after we hung up. My tears were not sad tears, they were happy tears. I was just so relieved and a bit overwhelmed by everything he had said. I finally got the answers I've been waiting for and know exactly what is going on with my body. 

Like I said, I had a laparoscopy done 2 weeks tomorrow.  The morning of the surgery, I was pretty relaxed. I guess I am just used to the many surgeries I've had in the past 5 yrs. Dr G had spent almost 2 hours removing scar tissue possibly from endometriosis and other things he found in the way. Then, I spent about an hour in the recovery room, but when they were about to let Justin come see me, they started to panic. My blood pressure was scary low and I just remember having about 3 nurses trying to get my pressure up, so I spent another 30 minutes in recovery before the hubs could come check on me. The first week was hard. I could barely get up to walk to the bathroom, but they told me to try and walk a little to help heal faster. I felt great the first day since I still had anesthesia in my system. The next day was the worst. I felt like I had gotten ran over by a train. I couldn't cough, which sucked because I had had a bad cold just 5 days before surgery so still had a lot of mucus and bad cough. Sneezing and laughing was painful and if you know me, you know that laughing is my favorite haha. The first week I had help from the hubs and friends. I want to say that I am truly blessed to have these friends that are more like family to me. I know I can always count on them. Also, I needed help since I was hosting Friendsgiving at my place. I had no idea that I would have surgery 6 before the event when I planned it. Oops! With lots of pain killers and lots of help from everyone, I made it through the day! 
The morning of surgery. So excited!
After surgery...loopy Sindi haha
4 hours after surgery. I was soooo bloated from the gas that they filled my uterus with, I looked 5 months pregnant. 

Up close of the incision in my belly button...ouchie. It 's as  painful as it looks.

2 days ago. Finally bloating has gone down. Now, I have lots of bruising and my right incision hurts. My belly button hurts every now and then.
I have a legitimate excuse to lay around and do nothing hehehe!
I am still in some pain, but not as bad as last week. Right now my main focus is to take it easy, which is very hard for me. I'm an up and go kind of girl. Oh and I've been banned by Dr G from working out and running for the next 5-6 weeks. I cried when he told me that. I know, it's silly, but working out and running is my joy, but I know that this will all be worth it. Also, I don't want an umbilical hernia. OUCH! It doesn't sound like fun. The next step towards Baby Barker 2017 is to call Dr B once I go through 2 cycles, then we will start medications and the intralipid infusion treatment. All of which will happen after we get back from PARIS!!!! I'm so excited. We are going 4 days after my birthday, on January 11th. Some people go somewhere tropical in the winter, but we are not like most people. We love the cold so so much! After our trip, we will be ready start again. I'm hoping that our IUI will be in late February or early March. 

Well, you are all caught up on my journey. It only took me 7 months to updated you haha. Sorry! My life hasn't been interesting other than us going to San Francisco and Napa for our 5th anniversary. We went for 8 days and it was so much fun! I would tell you all about it, but it'll take me 2 posts, so I'll just show you photos. Enjoy!!!



Charles Krug (Robert Mondavi's brother owns this one. It's right across from Mondavi lol)

Del Dotto Winery

Giants and Cubs. The Cubs won, of course.







In memory of our sweet boy, Jamieson <3

Vote Vino lol



Griswold!!!! One of our favorite movies is Christmas Vacation


Castello Di Amorosa

Such a beautiful castle. I want to live here. The hubs bought me $500 worth of wine :D

I love us!
Sir Lancelot the cat
I couldn't bend that darn finger hahaha!

In the torture chamber. The guy that owns the castle bought these from all over. They are legit.

Spikey torture chair. Tour guy said it wouldn't hurt if you had jeans on...lies! Haha

Add caption

This goat was eating the olives.

I love goats


I have more pictures, but like I said, it'll be a long post. Thanks for stopping by!

-Mrs B

3 comments:

  1. Love reading your updates Sindi. So happy that the NY doctor has a solution and has instilled more hope into these circumstances. I know it's going to happen for you and I look forward to reading more of your posts.

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    Replies
    1. Jeannette! Thank you so much for taking the time to read about my journey. It means a lot to me. I am beyond excited to see what 2017 will bring us. Hopefully, it'll be Baby Barker ❤️❤️ Much love and take care!

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